Sunday, March 13, 2011

Pagoclone...When will it be available? Ever?

This video below cites a 55% effectiveness rate for users and the video shows a dramatic decrease in the stuttering of the subject in question. I recently did research online and read an entry by Tom Weidig (from The Stuttering Brain Blog) on Wellsphere that didn't give me much hope. The trials are ended, the results were less than expected and, thus, it seems Pagoclone probably won't be available in the foreseeable future.

Video: Stuttering: Neuropharmacological Improvement

While I am no scientist and do not understand all of the trappings that surround and ramifications that result from such trials, it is somewhat frustrating that, even though the drug has been very effective for some and there are virtually no detrimental side effects that they can determine...the larger results determine the availability of the drug. So, for those who might greatly benefit from the drug...they are out of luck. Too bad.

I know that the following analogy will be far less than perfect, but it is similar, in my opinion, to the effects of melatonin. For many, it tremendously helps them to fall asleep at night. But, what if the FDA in the United States banned the supplement for resale simply because no empirical study shows it to be effective? That result would be unfair to those who benefit from melatonin.

Some 3 million individuals in the United States alone suffer from stuttering/stammering and, worlwide, about 1% of the global population stutters. We should all be given a chance to experience the possible beneficial effects of Pagoclone...even if it doesn't work for everybody.

Scientific progress can be frustratingly slow. Grrrr!

2 comments:

speech space said...

iam from india and i completely agree with you if drugs with severe side effects can exist why cant pagoclone.

Darlene said...

I wonder if it has to do with it needs to be proven to be commercially worth producing, something it apparently hasn't achieved yet.